As women, we rarely hear about the integral role women have played in history. We know even less about the lives of women with disabilities in history. Throughout the month of March, which is Women’s History Month, I plan to feature women in history, both recent and not-so-recent, who have lived with disability. Some of these women might be famous while others you might never have heard of. First up, Juliette Gordon Low.

Juliette Gordon Low, founder of the Girl Scouts

Juliette Gordon Low was born on October 31, 1860, in Savannah, Georgia. As a child, Juliette, known as “Daisy” to her friends and family, developed a lifelong love of the arts. She wrote poetry, sketched, painted, acted in plays and later became an accomplished sculptor.

After attending boarding school in Virginia and New Jersey, Daisy traveled extensively in the United States and Europe. Daisy suffered from chronic ear infections as a young adult. By the time she married William Mackay Low on December 21, 1886, she had lost most of her hearing in one ear due to improper treatment. Unfortunately, Daisy’s wedding day brought an unwelcome gift:

At her wedding, when she was 26, she lost hearing in her other ear after a grain of good-luck rice thrown at the event lodged in her ear. When trying to remove the rice, the doctor punctured the eardrum and damaged the nerve-endings resulting in a total loss of hearing in that ear.

Daisy and William moved to England after the wedding. Daisy temporarily returned to the United States during the Spanish-American war to help her mother organize a convalescent hospital. William Low died in 1905 and in 1911, Daisy met Sir Robert Baden-Powell, founder of the Boy Scouts and Girl Guides, who inspired her to found the Girl Scouts in the United States the following year.

As Daisy encouraged girls to learn about homemaking, arts, science and the outdoors, she also included girls with disabilities, at a time when many organizations excluded them:

“Juliette Low was very open-minded,” says Jami Brantley, historian at Girl Scout First Headquarters, which today showcases vintage uniforms, badges and handbooks, and chronicles the history of the group. “She wanted the organization to not just be for the more elite girls.”

Juliette Gordon Low died of breast cancer on January 17, 1927, in Savannah, Georgia. From the original troop of 18 girls, there are now more than 3.7 million Girl Scouts.

Learn more about the life and work of Juliette Gordon Low:

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I am not an expert on disability.

I have been hearing impaired my entire life and worn hearing aids since I was three years old. I have lived with hydrocephalus and Dandy-Walker Syndrome since I was diagnosed at five years old. Four and a half years ago, I became quadriplegic after a freak illness. I’ve recovered my mobility but I still have many health problems.

I’ve told my story over and over again not to bore my loyal readers but because I believe it is vitally important to tell my story. I want to put a woman’s face on spinal cord injuries and paralysis.

I think the best way to help other women with paralysis and spinal cord injuries is to tell my story, to demystify this crazy injury. I believe – I hope – that by speaking out, I am empowering others.

However, this is only my story. I would like to hear yours. If you are a (cis or trans) woman with a disability or a chronic medical condition, I’d like to interview you for this blog. I am interested in what it’s really like to live with your disability/condition on a daily basis, how it affects you, any discrimination/barriers you face and even what you like about living with your disability/condition.

If you are interested in sharing your story, please email me at danine@danine.net. I will be happy to work with you to conduct the interview in whatever format best meets your needs.

Cartoon originally from WillDrawAnything.com

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