So, I’m back. The website was down for a while as I transitioned to a web server and got everything all spiffy-looking. Do you like it? The pink cosmo in the header is actually from my very own garden. (Yes, I am shamelessly begging for compliments.)

While I was offline, I’ve been thinking about where I want this blog to go and what kind of activism I want to be doing. I am a feminist and will always write about and fight for women’s rights. I am also a woman with multiple disabilities and I have started to shift my energies into fighting for disability rights. However, as time has gone by, it seems downright silly to me that disability rights are not a core element of the feminist movement. According to the Centers for Disease Control and Prevention (CDC), as many as 1 in 5 women in the United States are living with disabilities. Surely an issue that affects 20% of U.S. women is a feminist cause, right?

Well, not really. Disability rights and feminism have historically been separate movements and it’s time to change that.

While other feminists with disabilities have tried to end discrimination and harassment of people with disabilities by focusing primarily on ableist language and privilege, I believe we need to think bigger.

I subscribe to the social model of disability:

The social model of disability, on the other hand, sees disability as a socially created problem and not at all an attribute of an individual. On the social model, disability demands a political response, since the problem is created by an unaccommodating physical environment brought about by attitudes and other features of the social environment.

What this means is that although I may have a hearing impairment (among other things), it is not what disables me. My hearing loss in itself is not what keeps me from fully participating in society. Instead, I am disabled and left on the sidelines of society because there are:

  • too many jobs that depend on being able to hear and listen, such as simply being able to return phone calls on a regular basis (I don’t always hear well on the phone, especially if I have to take down information)
  • too many restaurants, stores, theaters, auditoriums, churches, and other public spaces with background noise and bad acoustics that make it difficult to socialize, network and simply be with people
  • too many unintelligible PA systems in stores, airports, subways, airplanes, and public and private buildings of every sort that provide relevant and important information (I freak out a little on planes every time the flight attendants come on over the PA and I can’t understand a word they’re saying. Are they saying something I need to know, something safety-related, or are they just announcing they’ll be coming along with the drinks cart?)
  • too many teachers and professors who don’t talk loud enough, fail to provide written notes/outlines/PowerPoints so I can follow along or simply just talk to the black/white board

Those are just a few of the ways I am disabled by my hearing loss according to the social model of disability. As feminists, I think we need to be doing more to support our sisters with disabilities. Temporarily able-bodied (TAB) feminists need to join the fight to help women with disabilities secure our rights in the following areas:

  • Health care (including reproductive rights)
  • Education
  • Economic rights
  • Sexual assault and domestic violence
  • LGBT issues
  • Immigration
  • Social Security
  • Women in the military and women veterans
  • Employment

This is not an all-inclusive list and I am 100% positive I have forgotten some very important issues. I apologize for that in advance. Also, it goes without saying that all of these issues must be viewed through a multi-racial, multi-ethnic lens. Being disabled is not just about white, middle-class women. It is just about ‘American’ women, either. While I will probably focus more on North American women, disability is an international issue and we need to be mindful of that.

In the coming days, weeks and months, I plan to talk more about all of these things. I hope you’ll join in the conversation.

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Today is World AIDS Day 2009, a day to raise awareness of HIV and AIDS worldwide. We pause to remember the nearly 600,000 Americans who have died of this horrific disease and pledge to help those living with HIV/AIDS. The CDC estimates that more than a million people are living with HIV/AIDS and that number is growing, with 56,300 new infections in 2008 alone.

World AIDS Day is observed on December 1st and has been every year since 1988 when the World Health Organization marked the occasion as a way to “to raise awareness and focus attention on the global AIDS epidemic.”

Every year, we trot out the red ribbons (see above) and alarming statistics. We pay lip service to the cause of fighting HIV/AIDS but are we actually making real progress at fighting the disease?

I know I’m not doing my part.

In middle and high school, I volunteered for the AIDS Resource Council of Wisconsin and was a member of their Teen AIDS Prevention Program (TAPP). TAPP was a small group of peer educators who went to local schools and community groups. We talked to middle and high school kids about what HIV/AIDS is, how you get it (direct contact with blood, semen, vaginal fluid or breast milk), and how you don’t get it (You cannot get AIDS from Sammy peeing in the school pool. Nope!)

We explained that you need to take universal precautions when dealing with bodily fluids that transmit HIV. We explained that giving and receiving blood is safe, that the Red Cross screens all blood for HIV.

We also talked about sex. We talked about the fact that abstinence is the only 100% way of not getting HIV, but if you’re going to have sex, you need to use protection: condoms and dental dams. We demonstrated how to put a condom on using our for-demonstration-purposes-only dildo, Pete the Purple Penis.

Prevention efforts like ours helped. A study at Johns Hopkins found the HIV transmission rate has dropped 33 percent since 1997, the year I left for college and stopped working with ARCW. That’s great news. Still, when more than a million people in the United States and more than 33 million people worldwide are living with HIV, we are not doing enough to stop this disease.

Every day should be World AIDS Day.

Here in the U.S., we need to eliminate abstinence-only funding and teach age-appropriate, comprehensive sex education in every state and every school district. I was lucky enough to attend health classes in the Eau Claire, WI, school district, where health teacher Deb Tackmann constantly fought with the school board and the community to include real sex education in the curriculum: HIV/AIDS, STDs, teen pregnancy and contraception (including condoms).

Everyone needs to know this information. Here in Wisconsin, the legislature is considering the Healthy Youth Act (AB 458 & SB 324). According to Planned Parenthood of Wisconsin, the Healthy Youth Act:

requires schools that teach sex education to do so in a responsible, comprehensive manner that includes information about abstinence and sexually transmitted infections (STIs) and pregnancy prevention strategies, such as birth control and condom use.

If you live in Wisconsin, please contact your state senator and ask him/her to vote “yes” on the Health Youth Act (SB 324).

Another step we can take to prevent HIV/AIDS is to eliminate federal funding for abstinence-only education. After President Obama stripped abstinence-only monies from the federal budget, Senator Reid has included language in the Senate health care reform bill that will re-authorize abstinence-only funding for another five years. Call your representative and senators: Tell them to remove abstinence-only funding from health care reform.

We can also volunteer or donate to a local AIDS service agency. Check your yellow pages for one near you.

There is much more we can do to prevent HIV/AIDS here in the U.S. There’s no excuse; we should be doing it.

To learn more about the global AIDS epidemic and how it affects women, click here.

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denied2In addition to yesterday’s post on the New Office of Women’s Health in House Health Care Bill, I have another National Women’s Day of Action for Health Care Reform postup at the AAUW Dialog blog entitled I Am Not a Pre-Existing Condition. here’s an excerpt:

I have a long list of pre-existing medical conditions, so I have a lot invested in health care and health insurance reform. But even if I didn’t have this crazy, messed-up body with all its injuries, conditions, and surgeries listed in my medical chart, I could still be denied health insurance. At the very least, I would probably have to pay more than a man would.

Why, you ask? The answer is simple. I’m a woman.
Keep reading…

Also, a little National Women’s Day of Action for Health Care Reform link love:

So… have you called or emailed your representative and senators to ask them to vote for health care reform? Do it now!

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I’m starting a new feature here on the the danine.net blog. Each Saturday I’ll do a roundup of the blog posts I found most compelling that week and post them. I hope you enjoy it and find something interesting to read. Best, Danine


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