My Effing Body

I’m supposed to be writing today. I’ve half a dozen ideas for great blog posts whirling around in this crazy brain of mine. Instead, I’m lying flat on my back in bed, writing this on my iTouch. I’ve got a migraine like I have had most of the summer. I’m too miserable to read a book or magazine, listen to the radio (sorry NPR), or watch TV. I need to re-do my website header graphic and design a business card. I need to scope out new leads for article submissions.

I don’t have time for this being sick bullsh*t. Unfortunately, my body disagrees. The pain medicine isn’t working today so I don’t even get a respite.

For all the people who wonder why someone who walks and talks is still on disability, this is why: you can’t have a major, major insult to the brain stem without devastating, disabling headaches that leave you really really sick.

Yes, this is a bad one and yes, I’m pissed. I’ve got things to do, a life to live.

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Thank You, Senator Kennedy

When Sen. Kennedy died and the obituaries and memorials started pouring in, I was shocked to learn about the number of laws he had been responsible for. Many of these have transformed my life personally so it seems appropriate to take a moment to say thank you:

Thank you, Senator Kennedy, for the Americans with Disabilities Act. As a person living with a hearing impairment since birth, I will never know how much this act has improved my life.

Thank you, Senator Kennedy, for the Fair Housing Act Amendments of 1988 (FHA) which extended the Fair Housing Act of 1968 to include people with disabilities and families with children. Looking back, the FHA and the ADA were probably the laws that required the residence hall staff at my alma mater, Minnesota State University, Mankato, to install visual fire alarms in my dorm room. (Because of my hearing impairment, I can’t a fire alarm when I’m asleep with my hearing aids out, therefore I need a visual cue that all hell is breaking loose.)

Thank you, Senator Kennedy, for the Individuals with Disabilities Education Act, which guaranteed a free and appropriate public education to children with disabilities, regardless of their severity, in all states. Even though I had a severe hearing impairment, I went to public schools and got a great education.

Thank you, Senator Kennedy, for supporting Title IX. I have never known a world where it is not normal for there to be a girls’ track, cross-country, swim, gymnastics, volleyball, basketball or soccer team. Without Title IX, we would not have the WNBA. Without Title IX, I probably wouldn’t know my best friend today, who decided to attend MSU, Mankato partly because of its women’s hockey team.

Thank you, Senator Kennedy, for all of your work on behalf of vocational rehabilitation, student loans, food safety, generic drugs, the list goes on and on. I am humbled when I realize how much of your work affects me on a daily basis.

Most of all, thank you, Senator Kennedy, for your work on behalf of universal health care. Yes, “the work still goes on”, even though you’re not here, but don’t worry: We’ll finish the job. There will be quality, affordable health care for every American.

Thank you, Senator Kennedy, for being a great senator, a great liberal, a great Catholic and a great American.

Thank you, Senator Kennedy. May you rest in peace.

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Remember When 'You Play Like A Girl' Used To Be An Insult?

play-like-a-girlI went Facebook yesterday and while I was looking at my newsfeed, I noticed that my 12-year-old niece had added this “Piece of Flair”. I can’t tell you how much I love this.

Our society worships at the altar of the 90210 stick-girls and calls Jannifer Love Hewitt “plus-size” and “curvy” for wearing a size four. At the same time, the First Lady is crucified for having pride in her athletic arms and legs. (OMG, did you see that she actually wore shorts on vacation on Martha’s Vineyard? Like, how totally unheard of.)

On the other hand, maybe Michelle Obama’s positive body image is having a ripple effect. Let’s face it: The parallels to Jackie Kennedy are not unfounded. She is educated, classy, beautiful and glamorous. Jackie O’s signature item was her sunglasses. Michelle O’s are her healthy, toned upper arms. Admit it: you’re jealous as hell. I am. I think Michelle Obama’s lasting legacy will be to be healthier and have a positive body image.  I think she’s having an effect already.

My niece is  trying out for the volleyball team at her school. I have no doubt that she’ll make the team, but even if she doesn’t, I love that she is taking pride in her body’s strenth and power.  Strength is beautiful. Health is beautiful. It’s not just about a number on a scale or a dress size.

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Pleasantly Plump or Pathetically Unhealthy?

I was back at the clinic this morning for another experiment in that Evil Demon known as Socialized Medicine. (Cue the Carmina Burana soundtrack.) I was in the dressing room about to change into the ultra-flattery hospital gown for an ultra-fun test when I looked in the mirror and saw this:

Me looking "pleasantly plump" - and liking it! 8/27/2009

Me looking "pleasantly plump" - and liking it! 8/27/2009

I thought, “Wow, I look really cute. I like how I look in this shirt and these jeans. I like my curves. I look, dare I say it… pleasantly plump?”

I was feeling pretty good about myself when I walked out to the small waiting area. Well, that is until I noticed the story on the morning talk show (I think it was the Today Show). The perky, skinny host and guest were talking about how important it is to reduce inches around our middle sections to reduce our risk for heart disease and other fun afflictions.

What the hell, universe? I couldn’t have even one moment of feeling good about myself without being reminded I’m an unhealthy pig?

I guess the larger question is, what is the balance between striving for better health and still maintaining a good self-esteem? How does the media educate the public on prevention and wellness and not make us hate ourselves at the same time?

I don’t have any answers. In fact, after my appointment, I decided to give the cosmos a ginormous “Screw You!” and headed to McDonalds for an Egg McMuffin meal. With a Diet Coke, of course.

The local Mickey D's - 8/27/2009

The local Mickey D's - 8/27/2009

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Eeeek! I'm published in Bitch!

I just received the fall ’09 issue of Bitch magazine in which yours truly has a column. Yup, I’m published. Yee-haw!

So what are you waiting for? Go out and buy a copy already! Better yet, subscribe. Bitch is a fantastic indie mag that describes itself as the “feminist response to pop culture”.

Oh, and the other important deets – my column is about Meghan McCain’s relevance to the current political discourse. You can find it on page 12-13.

Thanks for reading – I appreciate your support! Love, Danine

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This Is What A Feminist Looks Like

danineTwitter_smIn anticipation of Women’s Equality Day tomorrow, I am posting an essay I wrote shortly after returning home from the National Young Women’s Leadership Conference in March.

April 4, 2009

This is what a feminist looks like

Growing up in the Midwest, I thought feminist was a bad word.  Feminists were zealots like Gloria Steinem and Betty Friedan who wanted special and unnecessary laws like the Equal Rights Amendment passed.  Feminists were lesbians (also a bad word) who hated men, burned their bras and refused to shave their legs.  Feminists were not smart, determined, independent women and girls who accomplished anything they set their minds to.  As I grew up, graduated from college and entered the workplace, I gained more respect for feminism.  If asked, I would probably even describe myself as a feminist but until recently, I couldn’t really explain what that meant.

In March, I attended the National Young Women’s Leadership Conference (NYWLC), where we discussed how women are affected by the economy, health care, reproductive rights, education, global warming, international relations, war and domestic violence.  We talked about how to improve conditions for women and girls everywhere. Women like Dolores Huerta, Eleanor Smeal, Lilly Ledbetter and Secretary of Labor Hilda Solis told us we could change the world simply because we were women and feminists.

As the conference continued, I kept thinking about the “feminist” label.  The conference’s sponsor, the Feminist Majority Foundation (FMF), sold t-shirts and tote bags that said, “This is what a feminist looks like.” The shirts and bags went like hotcakes and everywhere I looked, women of every size, shape and color were proudly wearing their new conference swag.

“This is what a feminist looks like.”

“Wait,” I thought. “Am I a feminist?”

It was a light-bulb moment.  These women, over 500 of us who had gathered to find ways to help  women in the United States and around the world, were just like me.  We may have had different ethnicities, religions, incomes, abilities, family backgrounds and life experiences, but these were women I would have met at college, work, Wal-mart, church, the doctor’s office, or a family reunion.

In-between breakout sessions, I went to the restroom and looked at the woman staring back at me in the mirror.  If all of these smart, savvy, beautiful women were feminists, then I must be a feminist, too. The light-bulb moments continued as I began to understand feminism was not the idealistic extremism I used to believe it was.  I started to form my own definition of feminism: women working to improve living and working conditions for all women.

I was proud of my newly-claimed title of “Feminist” but I wondered what my family and friends back in Wisconsin would think.  They probably wouldn’t be surprised, as I’ve always been pretty liberal.  Would they think I had become even more partisan than I already was?  I wanted people to realize the word “feminist” really meant “women’s champion”, not “leftist rabble-rouser,” so I began to make a list of why I am a feminist.

I am a feminist because I believe:

  • Every woman should have access to affordable health insurance
  • Every woman should be able to go to a doctor when she is sick and obtain prescription medication when necessary
  • Every woman should be able to find work that pays a living wage so she can provide for herself and her children
  • Every woman should receive equal pay for equal work
  • Every woman should be able to choose her own spouse, when and if she chooses to marry
  • Every woman should be in control of her own family planning, which includes the right to decide whether or not to have children
  • Every woman has the right to freedom of speech
  • Every woman should have the same legal rights as men
  • Every woman has the right to an education
  • Every woman has the right to own property

I also believe:

  • No woman should be discriminated on the basis of her gender, age, income level, race, sexual orientation, religion, disability or other life circumstance.
  • No woman or girl should ever be raped or sexual abused, period.  Rape against women and girls should never be used as a weapon during war.
  • No woman or girl should be subjected to genital mutilation.
  • No woman or girl should be a victim of human trafficking, sold into sexual slavery or work in a sweatshop.
  • No woman or girl should be forced into marriage without her consent.
  • No woman should die in childbirth or as a result of pregnancy-related complications

Above all, every woman and girl should have enough food to eat, clean water to drink and a warm place to sleep at night.

Looking over this list, I realize my girlhood notions of feminism were wrong.  Fighting for women’s rights is not outrageous.  Women’s rights are human rights.  We are entitled to our rights and we must fight to help ourselves and our sisters.  As Mavis Leno, chair of FMF’s Campaign to Help Afghan Women and Girls, said at the conference, “When you are asking someone to give you your human rights, you are talking to someone who stolen them from you.” We have a lot of work to do, but feminist and labor advocate Dolores Huerta declared at NYWLC, “We can do this. You know why? Because we’re women.”

Yes, we can.  As Dolores would say, ¡Si, se puede!

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Being Anti-Obama Is Not the Same As Being Anti-Bush

Some on the right, such as the birthers, deathers and teabaggers, have insisted their anti-Obama rhetoric and behavior is acceptable because “the left did the same thing to Bush.” When he appeared on Meet the Press recently, FreedomWorks’ Dick Armey tried tried this argument again:

DAVID GREGORY: Do you bear some responsibility for the tone of the debate?

FMR. REP. DICK ARMEY (R-TX): Not, not whatsoever. Not when you see the kind of extreme thing you just saw, the—you know, I had my differences with President Bush, George W. Bush, there’s no doubt about it. They were well aware of that. But when moveon.org ran those ads that compared President Bush with, with Adolf Hitler, I thought it was despicable.

MS. RACHEL MADDOW: They never did that.

REP. ARMEY: They did do it. I’ll show you the ad.

MS. MADDOW: They didn’t do that. They never ran an ad that compared…

REP. ARMEY: All right. Anyway. All right.

MS. MADDOW: MoveOn never ran an ad that compared Bush to Hitler.

Um, Rachel, you know I adore you and all that, right? Moveon.org did do that. Here’s the ad. It’s not cool.

Still, the “Bush is Hitler” didn’t take root with most of the Democratic party.  Despite what we thought about what happened in Florida and the Supreme Court decision in 2000, those of us who voted for Al Gore accepted that George W. Bush became the 43rd President of the United States on January 20, 2001. When the transfer of power from the Clinton administration to the Bush administration was complete, most of us took a deep sigh and hoped for the best.

I believed (and still do) that George W. Bush was a good man. I wasn’t sure he was up to the job of being president but was reassured that he had chosen Dick Cheney for his Vice President. Foolishly, I thought Cheney’s competence and experience would be enough to keep our country afloat. How could I know he would use his political expertise to advance his personal agenda?

But as usual, I digress. I do like a tangent.

Most Gore voters accepted Bush as our president and moved on. (No pun intended.) He was our commander in chief on September 11, 2001, and all of those scary days that followed. He was our commander-in-chief as we went to war in Afghanistan. As the Bush administration began to make the case for the Iraq war, many people had doubts.  There were anti-war protests but the anti-war/anti-Bush sentiment didn’t take root with the American left.

Maybe I can only speak for myself and my family, friends and neighbors who share my beliefs. (There are many who don’t.) We may dislike Bush’s decisions, policies and actions, but I highly doubt anyone of us would say he is evil. As far as the Nazi and racist imagery the right is putting out, the worst the mainstream right can be accused of is portraying Bush as a monkey in web cartoons (which doesn’t have the same connotation for white people), a doofus on comedy shows and feeling a perverse pleasure that all the “W”‘ keys were missing from the White House keyboards when the Bush administration arrived on January 20, 2001.

Moveon.org’s ad was not appropriate and they apparently got the message. It didn’t seem to get a lot of airplay.  The Democratic party never encouraged its members to yell at their members of Congress. I never went to a local park and saw a picture of Bush depicted as Hitler or any other terrorist. It may have happened elsewhere but it wasn’t often. There was a fringe movement; it wasn’t mainstream.

When I went to the health care rally, I saw people carrying awful signs. These were not awful people. They were people who go to church, care for their families, and work hard at jobs they may or may not like. They shop at Wal-mart and go to brunch at the Pub on Sunday.  They watch Fox News and listen to the Republican Party hate machine.

I don’t know what the answer is but there is a crazy divide in this country that’s got to stop.

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Socialized Medicine is the Devil's Handiwork

I’m on Medicaid. I have no problems admitting this or talking about it in public. In fact, I’ve done it three times now: in a local TV interview, at an Organizing For America-sponsored health care rally and at Rep. Steve Kagen’s recent town hall on health care.

Medicaid is socialized medicine. A short description from the federal Centers for Medicare and Medicaid Services:

Medicaid is available only to certain low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Medicaid does not pay money to you; instead, it sends payments directly to your health care providers.

Depending on state law, you might also have a co-pay. I don’t know how it is in other states but Medicaid in Wisconsin is excellent. It is there for people who need it, like me. Within a few weeks of becoming paralyzed in 2005, I applied for Medicaid. I was approved within a month. Medicaid retroactively covered my hospital expenses from the date of my application. It paid for two full weeks of inpatient rehab more than United Health Care had authorized. Those two weeks may be the reason I am walking today.

United Health Care had said I could have 20 outpatient physical therapy sessions and 20 outpatient occupational therapy sessions. Medicaid didn’t set a limit. I went to occupation therapy twice a week for five months and have regained all function in my hands. At one time, they were completely paralyzed. I went to physical therapy for eleven months and am walking normally again. At one time, I was a quadriplegic.

That’s not to say Medicaid just writes a blank check. The first year I was home from the hospital was a difficult one. My mom, who was my primary caregiver at the time, and I ran into a lot of problems related to my care we didn’t know how to handle, often late at night or on the weekends. After I ended up in the ER more than 10 times in less than a year, I received a letter from the state Medicaid agency saying I had reached my limit for ER visits. They gave me the names and numbers of my doctors (internist, neurologist, rehab specialist) that I should see instead of going to the ER.

I was thinking about all of this this past Monday. The regular clinic I go to is usually booked weeks (sometimes months) in advance so they have set up an urgent care clinic adjacent to the ER. This is a walk-in clinic; first-come, first-served. It is staffed by physicians’ assistants and doctors and I believe they charge the same as a regular clinic visit.

So Monday – I had been sick for a few days. I knew I’d never get an appointment with my regular doctor so I went to the walk-in clinic. I registered at the desk, where they confirmed my personal data, including my insurance, the “Forward card.” (Wisconsin had so many names for Medicaid it’s ridiculous – Medicaid, Medical Assistance, EDS, Forward Card, Title XIX).

The clerk told me I could have a seat. A few minutes later, a nurse called me into the triage area to take my vitals.  After that was done, I went back to the waiting area. About five minutes later, they called me to go back to the exam room. Long story short: the entire exercise in socialized medicine, including the PA pulling up my records online, waiting for the lab work to come and having my prescription filled at the pharmacy (co-pay $1) took about an hour and a half.

Medicaid is socialized medicine. It is not evil. There is a place for it in our society. As for “government takeover of health care”, that’s ridiculous. The government had no role in my health care on Monday, except to pay the bill. They didn’t choose the clinic or physician’s assistant I saw. I could have gone to the other clinic in town. They didn’t tell her which drug to prescribe. She chose the one that was most appropriate for me, although the pharmacy did substitute a generic.

Prior to my enrolling in Medicaid, I had been on Blue Cross/Blue Shield or United Health Care plans for most of my life. The insurance chose which networks of doctors I could see. Medicaid does not do that. Doctors may choose not to participate in Medicaid but there aren’t many who do so. The insurance companies also had lists of drugs they would cover or not cover.

Rationing and government takeover on health care? Please. It’s far more likely to happen with private insurance and we all know it. Is this really about health care or is it about a few hundred Republicans’ job security?

When 14,000 people lose their health insurance every day, that seems incredibly selfish.

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More Highlights from Kagen Town Hall

As I said yesterday, I attended Rep. Steve Kagen’s health care town hall in Minocqua, WI. As a political junkie who has been following the health care debate, it was a very entertaining show. Here are a few highlights:

  • The woman who complained that “government has done an absolutely horrific job… why should we trust them with health care?” She appeared to be retired so Kagen asked if she was on Medicare. Yes, she was. When Kagen asked if she was willing to give her Medicare up, she replied, “Oh well, my husband handles our finances.” The crowd laughed. In other words, socialized medicine is evil but keep your hands off my Medicare.
  • PIC-193A very bald retired physicist wearing a Wisconsin Badgers jersey (see right) said he had been researching global warming since the beginning of the year and he is convinced it is bogus. Kagen asked if he knew who Richard Feyman, the Nobel prize-winning physicist, was.  The physicist said yes. “And we can both agree he was a pretty smart guy?” Kagen asked. “Yes,” the man replied. “Well, Feynman believed there was evidence of global warming.” The bald physicist didn’t have much to say about global warming after that. It should be noted that a quick Google search fails to find a conclusive article or quote confirming Feynman’s belief in global warming which only means I couldn’t find it. It was still a great moment.
  • A World War II veteran demanded to know, “Why are you so against nuclear power?”
  • When Kagen pointed to the Veterans Administration as an example of government-sponsored health care, another gentleman grumped that the VA was so bad, “In the 1970s, I kidnapped a patient and took him to a good hospital.”
  • PIC-0190The people’s lack of faith in government was a common theme. A middle-aged man (right) said, “If you get rid of all the waste [in government] people would have a lot more faith in government”. Another man said, “Government in and of itself, people have lost faith.”
  • The most poignant comments came from a Eagle River woman who told us about her granddaughter being born with a hole in her heart and how grateful she was that her son was able to afford insurance for his family. More importantly, she said we have to remember that health care reform isn’t a Democrat problem or Republican problem. It’s a human problem. “We have to stop our anger. We have to look at what is good for every human being,” she said.

Indeed.

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